I work part-time at a computer centre. I can choose the hours I work and manage efficiently with limited energy. Being able to continue working makes me feel independent.
Kayaking has been massively important to me. It has not only helped my physical rehabilitation, it has aided my mental wellbeing. Without kayaking, I am not sure my body would be as strong as it is now.
Everyone at my workplace knows that I have MS, including my clients. I’ve had to become a role model in my community because there has been no one else for me imitate.
It’s important to have dreams. I’m in my last year of high school and I imagine myself becoming a successful interior designer. When I think of something I want to do, I stay focused and determined until I succeed.
I live in a centre which provides care for people with progressive MS. Since moving here, I am so much more independent. Now that my husband is no longer responsible for my care, I’m just part of the family and we can do nice things together.
I’ve always loved sport. Before being diagnosed with MS I was a keen footballer. I now coach a wheelchair basketball team. The most fulfilling part of it is helping other people build their confidence and find a sense of achievement.
I used to be a bank manager, but now I use my time to study new topics like history, astrology and painting. MS has given me the chance to do more for myself, gain knowledge and become a better person.
Nine years ago I was diagnosed with primary progressive MS. While my wife is at work, I take care of the household duties and look after our daughters when they finish school. Continuing to feel useful is very important.
I was diagnosed with MS when my children were very young, which was really hard, but I didn’t let it drag me down. MS has shown me how strong I can be.
Catheters have made a big difference to my independence. I can relax about doing things like going out to meet friends… It’s also a bit of a party trick. I pull it out of my handbag and get people to guess what it is!
We are examples of how people are living with MS. We are people on crutches, people in wheelchairs and we’re all living and working. The world doesn’t end because we have MS. We show people how they can continue to live with MS.
My wheelchair is my constant companion and my assistant, helping me get from A to B. I rely on it to get me around, but I have never seen it as an embarrassment or a sign that says: “now I am disabled”.
The little things I can do at home make me happy. I sweep the floor, dust the furniture and wash the dishes. It’s funny because I’d never done any housework before, but now I really enjoy it! I’ve learnt a lot from my MS.
If you have MS or care for someone who has MS we need you!
Until last year, people living with MS in Poland had limited access to first-line treatment. They could claim for the costs of such treatment from the National Health Fund, but only for five years. After five years had passed, they had to fund treatment themselves.
For many years Zulma has lived with her son Juan Manuel, who is now 38. But their lives changed when Juan Manuel was diagnosed with MS.
Eliana lives in Lebanon and works in the Mimosa paper factory in Zahle to support her family. Mimosa has been recognised for setting an example of how employers can make reasonable adjustments to help people with MS stay in work.
Vassiliki was diagnosed with MS in 2003, while she was a second year student at the Aristotle University of Thessaloniki. Various barriers to access meant she couldn’t get to her classes.
Suzanne wrote to the CEO of her local NHS trust after being refused funding for treatment. Within a few months, she was able to access the drug she wanted.