My MS diagnosis – struggle and hope

Bernhard from Austria speaks from experience about the long and often uncertain journey to diagnosis. His journey was delayed when his general practitioner did not recognise the early signs of MS or refer him to a neurologist. He emphasizes the importance of finding a compassionate neurologist with knowledge of MS and the role of MS groups for emotional support and practical advice about MS.  

‘Every year on May 30th, people with multiple sclerosis come together for World MS Day.  Under the theme “My MS Diagnosis”, we remember the challenges associated with diagnosing this complex disease.  For many of us, the road to diagnosis was long and full of uncertainty. 

The symptoms of MS can be varied and often confusing.  Many of us go through months or even years of guesswork before finally receiving an MS diagnosis.  After countless doctor visits and extensive examinations, including MRIs and lumbar punctures, we finally receive the confirmation we have been looking for, for so long.  The frustration and anxiety during this time can be overwhelming, but the peace of mind of finally knowing what is happening to our bodies often brings some relief. 

The hurdles on the way to a correct diagnosis are numerous and often discouraging. In my case, the delay began with a general practitioner who didn’t take the symptoms seriously enough to refer me to a neurologist. Once I was finally able to see a competent and compassionate neurologist, things progressed quickly. But even then, the waiting period for tests and results was full of uncertainty and fear – an emotional strain that affects everyday life.

In addition to medical support, regional MS clubs and support groups can also be an invaluable source of support. Exchanging ideas with like-minded people who have similar experiences can be comforting and inspiring.  These clubs often provide not only emotional support, but also practical advice and information about local resources and treatment options.  By attending events and meetings, we can strengthen and encourage each other as we navigate our journey with MS together.’ 

Our thanks to Bernhard, Chairman of the MS Regional Club Steyr (@ms.club.steyr) in Austria.