MS doesn’t stop me spending time with my daughters
Twan, 41, Netherlands
Nine years ago I was diagnosed with primary progressive MS. While my wife is at work, I take care of the household duties and look after our daughters when they finish school. Continuing to feel useful is very important.
I used to be a home-care nurse but when the work became too physically demanding, I had to stop. That’s when I got involved in setting up a digital remote care program for Nieuw Unicum – a centre in the Netherlands specialising in care for people with progressive MS. Now I give demonstrations on how the service works and the benefits of using it. If I could have worked from home earlier on, I could have continued working for longer and would have felt less of a burden. I just needed technology to enable me to work.