MS doesn’t stop me spending time with my daughters

Twan, 41, Netherlands

Nine years ago I was diagnosed with primary progressive MS. While my wife is at work, I take care of the household duties and look after our daughters when they finish school. Continuing to feel useful is very important.

I used to be a home-care nurse but when the work became too physically demanding, I had to stop. That’s when I got involved in setting up a digital remote care program for Nieuw Unicum – a centre in the Netherlands specialising in care for people with progressive MS. Now I give demonstrations on how the service works and the benefits of using it. If I could have worked from home earlier on, I could have continued working for longer and would have felt less of a burden. I just needed technology to enable me to work.

For the past 18 months, I have been receiving support from nurses at Nieuw Unicum via the digital remote care program.

Fatigue is one of the most troublesome symptoms of MS and traveling uses so much energy, so this type of care is ideal and allows me to use my precious energy at home with my family.

My wife works, so I take care of the household duties and I’m am at home to look after our daughters when they finish school. Continuing to feel useful is very important. My own attitude and creativity keeps me going too.