As someone living with MS, I’ve taken part in numerous MS research surveys. The information that I, and the other participants, have given has helped to inform researchers, influencers and decision makers about the reality of MS from a medical, social, economic and emotional perspective.
Research benefits us all. If people are unwilling to participate in research then progress is halted. Even if the research isn’t directly beneficial to you, it might help someone else. As someone living with MS, I want to do what I can to help people who will be diagnosed after me. I like to leave things better than I find them and try to make it a little easier for the next person who comes along.
Everything that has helped us to better understand MS. Whereas in the past MS wasn’t really understood, we now have a clearer picture of what MS is, including an understanding of some of the factors that affect onset and progression and some of the indirect implications that MS can have.
I’d like to see treatment options for progressive MS, along with more research into paediatric MS, myelin repair, neuroprotection, and the role of genetics in MS.